The Inaugural Australian chILD Virtual Summit 2020 - On-Demand
Event Date: On-Demand
Location: On-demand via Vimeo link
Duration: approximately 3hrs
Click here to view the virtual course program
*Please note: the presentation, Interim chILDRANZ Flagship Results (Dr Suzanna Lindsey-Temple, Sydney Children's Hospital), is not available in the on-demand recording*
Five years ago, genomic sequencing was restricted to the research environment but now it is increasingly used in clinical practice, with genomic medicine making headway in the diagnosis of children with rare and chronic diseases. Barriers to widespread clinical implementation span diverse domains, including workforce capacity and capability, public acceptability and government engagement. The Inaugural Australian chILD Virtual Summit will provide a short Genomic update and access to further resources to clinicians, patient groups and specialties, including Respiratory, to address the current lack of up-to-date access to latest research and findings.
In the Australian health care landscape, similarly to other high-income nations, it has been found that research priority setting activities in paediatric chronic disease child/caregiver involvement is uncommon, and the methods often lack clarity. As such, the Summit will be a held across two separate virtual sessions for the specialist and patient groups, both focusing on genomics research with a special interest in Interstitial Lung Disease in the paediatric cohort (chILD) and a systematic and explicit process to inform a more patient and family-relevant research agenda in paediatric chronic disease. Research priorities identified by children, caregivers and health professionals emphasise a focus on life participation, psychosocial well-being, impact on family and quality of care.
In collaboration with:
On-Demand Registration for Clinical Session:
|Category||Price (incl. GST)||Register|
|TSANZ Student Member||$40||Register here|
|TSANZ Associate and Ordinary <105K Member||$60||Register here|
|TSANZ Ordinary or Corporate Member||$100||Register here|
Please contact the TSANZ Office on +61 2 9222 6200 or e-mail email@example.com